February 23, 2001 - 20 days after my 49th birthday - I was diagnosed with uterine cancer (endometroid adenocarcinoma). The ONLY reason I am sharing such personal details is to help people work through their own cancer experiences. Taken out of that context, some of the following information might seem kinda "weird", to say the least.


DISCLAIMER and WARNING! If you are spotting between menstrual periods see your doctor and request an endometrial biopsy! If you are diagnosed with uterine cancer, see a specialist - a gynecologic oncologist - to discuss your treatments options!



July 17, Saturday, 1993
Halfway through my normal cycle I had my first truly strange "period" which was mostly clear liquid with brown spots in it. Having had no children, I assumed this was the beginning of perimenopause. I was 41.

1993-1997
My periods remained irregular; sometimes heavy, sometimes spotty. By 1997 I was having limited bouts with mild insomnia, night sweats and hot flashes.

1998
That autumn I endured 5 weeks of heavy menstrual flow. The rest of the year I lightly spotted all the time, had no cramping, and only occasional hot flashes which were mild. But the miserable night sweats were more common. For the most part I felt pretty good, that is, when I could get enough sleep.

1999
I spotted constantly. Only 2 or 3 times this year did I have an actual "flow", and when I did it was very heavy. I was having hot flashes and night sweats most of the time.

2000
My periods spotted more often than they flowed. Sometimes I felt uncomfortably congested in my uterus, like I was about to have a period, but then I'd only spot VERY lightly or have an almost clear, light flow with a tinge of pink or brown. My hot flashes became painful. My ears burned and turned red, then the heat spread over my face and torso like a steam burn. I lost sleep from the night sweats: Exhausted, I became depressed. And the water-retention! One week I'd bloat so badly I was sure my skin had shrunk. I struggled to move normally and none of my clothes fit. Then for a day or two I'd be back to my normal size. That was so weird. I thought I'd never feel "normal" again. I was so uncomfortable I just couldn't function.

December 1, 2000
When my assigned OB/GYN asked me about my menstrual cycles I saw her eyes widen slightly with alarm when I mentioned that during the current year I had been spotting between periods instead actually having an what I considered a "normal" period. She took a Pap smear and an endometrial (lining of uterus) biopsy. The Pap showed atypical cells but the biopsy report said insufficient tissue for results. At first she explained that the "insufficient tissue" report from the lab probably meant that everything was OK. Later, I believe, she relented (see Feb. 8 below). She suggested that I set an appointment for a colposcopy, which I did.

February 8, 2001
In addition to the colposcopy exam the doctor took another Pap smear, an endocervical biopsy and another endometrial biopsy. I had what she later described as a vagal reaction to the biopsies which terrified me. That reaction involved extreme, painful cramping, vomitting and a blood pressure rise to 160/100.

February 23, 2001
My assigned OB/GYN said the biopsy results showed well-differentiated endometrial adenocarcinoma, grade 1. She said that if less than one half of the wall has cancer then surgery is all I'll have to undergo. If it has spread deeper than halfway into the uterus wall, she will assume that it had spread to my lymph nodes and I would require radiation in addition to the surgery. I am not comfortable with the possibility of her assigning me radiation treatments based on her assumption.

February 28, 2001
I asked my Kaiser-assigned OB/GYN about lymph node sampling but she argued that it's not standard procedure so she won't do it. I asked for a referral to a Gynecologic Oncologist - a gynecologist who specializes in female cancers - but she said no. She believes I don't need see a specialist because, in her words, this is a "simple" surgery. I started researching to learn more about my cancer. I suggest you do this too.

March 1, 2001
I had my 2nd opinion appointment today with a different OB/GYN. She set me at ease and even answered questions I hadn't thought to ask. She even explained to me the dangers of lymph node sampling which helped me understand the possible reason the first doctor didn't want to do it. She said that she'd be happy to refer me to a specialist.

March 5, 2001
Found this information about the
different types of uterine cancers.

March 22, 2001
I have an appointment for a pre-op consultation with a Kaiser GYN oncologist, about a two-hour drive from home.

March 24, 2001
Pre-op procedures, responsibilities and estimated lengths of time:
March 22: pre-op pelvic exam & consultation
March 24: blood drawn, ECG, & chest X-rays
March 25: Consume only clear liquids and jello
March 26: Mix and drink Fleet Phospho-Soda (oral saline laxative) three times today to clear bowels before surgery (In case I need part of bowel removed).
March 27: Surgery, 8AM
Surgery Length: 2-3 hours
Hospital Stay: 3-4 days
Complete Recovery: 6-8 weeks

My oncologist told me that because my cancer seems to be a grade 1, which is well-differentiated, he expected this to be an early cancer of the uterus and to be a very curable cancer. The only thing that worried him was that I'm not the typical person that develops uterine cancer. Most women with this kind of cancer tend to be over weight, hypertensive, diabetic: I am none of these things.

March 27, 2001
I am scheduled for 8AM surgery and I am ready!

March 28, 2001
On visual inspection of my uterus, the cancer looks like it's stage IA which is the lowest spread value and the doctor said it looked like it might be well-contained within the uterus. The pathology report will say for sure.

April 1, 2001
Today, the day after coming home from the hospital, I suffered the most incredible pain. It was gas. Sounds like it's not a big deal but I could not pass it and my belly just kept getting bigger and bigger, pulling on my stitches. I remembered my doctor telling me that the gas pain would get worse before it got better but I had no idea it would feel that bad. I tried Gas X - in fact I was taking double and triple doses of it - but it did not work. I was becoming delirious with pain. A friend called emergency for me and after wading through the usual questions from them, their on-call doctor suggested I take Milk of Magnesia in chewable form. It was amazing! I got almost immediate relief! If you have the same problem after surgery, try Milk of Magnesia and BE SURE to get the mint flavor. The plain flavor is disgusting.

April 7, 2001
I have been walking a little bit but it takes me three times as long to get anywhere. I must be quite a sight shuffling down the sidewalk, hunched over with my belly in my hands.

April 11, 2001
Over the last few days I have been becoming progressively depressed. I cry for no reason at all and I feel no hope for the future. Everything in my life is is fine but it FEELS like it's not. I am also having horrible hot flashes and night sweats followed by chills. I see the doctor tomorrow and I am going to ask for help.

April 15, 2001
I started using the Climara® estrogen patch (17 beta estradiol) on the 12th and I feel almost normal. No more crying and I actually feel good about life again. Still have hot flashes and night sweats but they aren't nearly as devastating as before. I hope they will diminish over time.

My pathology report : Cancer grade=2, cancer stage=1B, fallopian tubes, ovaries and lymph nodes are clear so I won't be needing radiation or chemo. For the next two years I will be having Pap smears every 3 months, then every 6 months for three yeares more. Since I now have no cervix to scrape for a pap smear, the doctor will take a scraping from the "vaginal cuff" which is the end of my vagina where he stitched the two sides together. That area is where the cancer would be most likely to return.


April 26, 2001
It's been one month since my surgery. Rode my bike today for 20 minutes. All that "lying around healing" stuff weakened me. I still have weird tweaks of abdominal pain now and then, like I'll be sitting in front of the computer "minding my own business" when I get a sudden knife-stab feeling in my gut followed by a dull ache... then it goes away. I can walk at a moderate to brisk speed for extended periods of time although if I get a gut-pain-stab I have to stop and rest until it goes away. Peeing is still weird but I think I figured out the pain. My abdominal muscles have always been strong so when I still had a uterus, I'd simply contract my abs, squeezing my bladder between the muscles and my uterus, and I could pee hard and fast and be back to whatever I was doing in no time (Yeah I REALLY DO sit around trying to figure out this stuff). Now when I tighten my abs to pee, the stream doesn't speed up AND I can't feel it anymore so I can't tell when I'm done. I get up but I'm still dribbling. So I stay sitting until I don't hear splashing anymore, which seems to take forever now, and when I'm empty I get a weird dull ache from being emptied. I get the same emptying ache with my bowels but we won't go there. I've been using the Climara® estrogen patch for 2 weeks now and I rarely have a hot flash anymore and only a couple or so night sweats. Emotionally I've been feeling pretty good as well.

June 1 2001
I am feeling great! I was having some hot flashes and night sweats but they have been more mild than before. However, my nurse-practitioner gave me a prescription for Bellergal which has eliminated the problem entirely and the only side-effect seems to be slight drowsiness which comes in handy at night! My other bodily functions have returned to normal. It's been 9 weeks since my surgery.

I HAVE PHOTOS! These are NOT for the squeamish! One was taken during my surgery and the other is of my uterus after having been removed. If you DON'T want to see graphic photos such as these, DON'T CLICK HERE!


June 28, 2001
GOOD NEWS! My first follow-up lab-work reports no sign of cancer!

August 24, 2001
I haven't been adding anything to this journal lately because I have been feeling GREAT! It's been about 5 months since surgery and there's nothing unusual to report.

September 20, 2001
The numbness and burning in my thighs (where the lymph nodes were removed) is lessening. My moods are mellow everyday and I feel great!

January 12, 2002
I feel GRRRREAT!!!!! Been eating a good diet and exercising!

March 16th, 2003
Despite the flu last year and bronchitis last month, I have been feeling quite well and my follow-up tests have been cancer-clean. The numbness in my thighs has reduced to an almost imperceptible level and the burning sensation is virtually gone as well. My hormone patch prescription calls for one patch a week but I have reduced that to half a patch a week or one patch every two weeks. My goal is to be completely off hormones by 2005.

May 2, 2003
I am doing extremely well. However, my mom was recently diagnosed with breast cancer.
Click here to read her story.

May 21, 2003
Tomorrow I am having a diagnostic colonoscopy. This afternoon I am drinking a solution called "Golytely". What a descriptive name, huh? However, I would NOT call this "lightly" since I gotta drink 4 liters of it and it's supposed to make me go & GO! It tastes like salty bubble-gum. The directions are drink 8 ounces every 15-30 minutes. If I am not "cleaned out" enough by 10:30 tomorrow morning, the procedure might be cancelled.

May 24, 2003
NO POLYPS!!! The demerol was a trip! It was injected into my I.V. shortly before the procedure and the last thing I thought was, "HEY! The walls are melting!" Then I was out like a light. Getting a colonoscopy was easier than a flexible sigmoidoscopy primarily because I was knocked out. Today my colon is sore, like I'd been punched in the gut, but in general I feel good.

May 31, 2003
Feeling quite well. Gut is no longer sore from the colonoscopy (finally!).

June 24, 2003
My dad was diagnosed with late-stage esophageal adenocarcinoma. Click here to read his story.

March 16, 2004
My grandmother - dad's mom - died. She'd had a stroke a few days earlier. Before the stroke she was mentally sharp as a tack and 3 weeks previously had celebrated her 102nd birthday.

April 20, 2004
I've adopted The Zone as my permanent, life-time eating plan. I'm already feeling the benefits.

July 31, 2004
My brother Steve died from squamous cell esophageal cancer - or it could have been the lung cancer - at 8:30 tonight.

March 6, 2005
My dad died from adenocarcinoma of the esophagus at 9:15 this morning. Today was his 82nd birthday.

February 3, 2006
Today is my 54th birthday! I am doing great! In January I started a yoga class at SBVC and it's really helped me center myself. The future seems bright!


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